LONG COVID RESOURCES
This is a growing list of Long Covid Resources that is open sourced from the LCAP Long Covid community, which meets every week in LCAP’s Twitter Space to share information. If you have ideas or helpful information to share, please contact us or add your resources to Long Covid Resources section in the general Google doc.
Long Covid 101
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2. Take 5, 10 or 20 min of your day to learn more about #LongCovid
Read: https://t.co/4TYRkcqYH0
Watch: https://t.co/sPoe35iK9E
Listen: https://t.co/Nn5GKpMdrH
Dive deep: https://t.co/20irUxQ0KJBonus read: https://t.co/Qd2wb6R9WF
Bonus listen: https://t.co/HvHQHT4AUS— charlos (@loscharlos) March 15, 2023
Long Covid Patient Resources:
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CDC: https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/index.html
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CDC (checklist): https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/post-covid-appointment/appointment-checklist.pdf
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CDC before appointment: https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/post-covid-appointment/index.html
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Patient & Physician guide from Covid-19 Longhauler Advocacy Project: https://docs.google.com/document/d/1VfENjAiOBKryT-dIOFyU8CyEAAKVR5xk9WyvlZF-u4M/edit?pli=1
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Information for doctors: https://longcovidfamilies.org/healthcare/for-doctors/
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ME/CFS testing recommendations: https://drive.google.com/file/d/1Yu79EYxQIwNVER5tErp7LH7KY8pI8S_e/view
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World Physiotherapy Pacing Resources:
Long Covid Trial research resources:
Long Covid Viral Persistence References:
Long Covid Biomarkers research:
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Elevated vascular blood biomarkers: https://pubmed.ncbi.nlm.nih.gov/36217108/
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Changes to white matter in brain two years after Covid: https://www.thno.org/v13p0724.htm
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Apparent Risks of POTS After Covid – Vaccine and Virus: https://www.nature.com/articles/s44161-022-00177-8
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Possible mechanism of Autonomic Dysfunction Post-Covid: https://www.sciencedirect.com/science/article/pii/S1566070222001308
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Circulating Anti-Nuclear Antibodies in Covid Survivors Predict Long Covid Symptoms https://erj.ersjournals.com/content/61/1/2200970
Long Covid Science/Studies:
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r/longhaulresearch:https://reddit.com/r/longhaulresearch
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@studylongcovid on Twitter
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Highlighted studies: