LONG COVID RESOURCES

This is a growing list of Long Covid Resources that is open sourced from the LCAP Long Covid community, which meets every week in LCAP’s Twitter Space to share information. If you have ideas or helpful information to share, please contact us or add your resources to Long Covid Resources section in the general Google doc.

Long Covid 101

• 2. Take 5, 10 or 20 min of your day to learn more about #LongCovid

  Read: https://t.co/4TYRkcqYH0
  Watch: https://t.co/sPoe35iK9E
  Listen: https://t.co/Nn5GKpMdrH
  Dive deep: https://t.co/20irUxQ0KJ

  Bonus read: https://t.co/Qd2wb6R9WF
  Bonus listen: https://t.co/HvHQHT4AUS

  — charlos (@loscharlos) March 15, 2023

Long Covid Patient Resources: 

• CDC: https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/index.html

• CDC (checklist): https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/post-covid-appointment/appointment-checklist.pdf

• CDC before appointment: https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/post-covid-appointment/index.html

• Patient & Physician guide from Covid-19 Longhauler Advocacy Project: https://docs.google.com/document/d/1VfENjAiOBKryT-dIOFyU8CyEAAKVR5xk9WyvlZF-u4M/edit?pli=1

• Information for doctors: https://longcovidfamilies.org/healthcare/for-doctors/

• ME/CFS testing recommendations: https://drive.google.com/file/d/1Yu79EYxQIwNVER5tErp7LH7KY8pI8S_e/view

• World Physiotherapy Pacing Resources: 

  • https://world.physio/covid-19-information-hub/long-covid

  • https://longcovid.physio/resources

Long Covid Trial research resources: 

• https://t.co/OJ7OCMiF43

   

Long Covid Viral Persistence References: 

• https://lc19.org/viral-persistence/

• https://www.nature.com/articles/s41586-022-05542-y

   

Long Covid Biomarkers research: 

• Elevated vascular blood biomarkers: https://pubmed.ncbi.nlm.nih.gov/36217108/

• Changes to white matter in brain two years after Covid: https://www.thno.org/v13p0724.htm

• Apparent Risks of POTS After Covid – Vaccine and Virus: https://www.nature.com/articles/s44161-022-00177-8

• Possible mechanism of Autonomic Dysfunction Post-Covid: https://www.sciencedirect.com/science/article/pii/S1566070222001308

• Circulating Anti-Nuclear Antibodies in Covid Survivors Predict Long Covid Symptoms https://erj.ersjournals.com/content/61/1/2200970

Long Covid Science/Studies:

• r/longhaulresearch:https://reddit.com/r/longhaulresearch 

• @studylongcovid on Twitter

• Highlighted studies: 

  • https://www.nature.com/articles/s41579-022-00846-2

Long Covid General Resources:

• https://www.boundedenergy.co.uk/resources

• https://longcoviddoctors.org

Long Covid MCAS Resources: 

• https://mastcell360.com

Long Covid Gaslighting References: 

• https://publicherald.org/the-new-republic-has-long-covid-all-wrong/

Long Covid Letters: 

• LCAP End The Long Crisis Letter to Government – Sign & Share! 

• LCAP UK End The Long Covid Crisis Letter – Sign & Share

• https://actionnetwork.org/petitions/tell-nih

• Petition to Dr. Ashish Jha to correct LC statements

• UK Create a Compensation & Pension Scheme for Key Workers with Long Covid